I can’t possibly expect to be able to comment on what it is like to be on dialysis – I’ve only observed the process. To try and understand more I have begun to search out some blogs by those on dialysis. Here are two:
The Facts on The big D. is a blog post by Ellie. Ellie is a young woman (the same age as my wife) in New York in need of a transplant. Ellie comes across as a straight shooter. She’ll tell us when it stinks and she’ll count her blessing aloud. Sitting in a dialysis centre is the last place she wants to be. Thanks for the honesty Ellie.
D(ialysis) Day Joe has just begun dialysis for the third time in his life. This is his first blog post from the chair. He first began dialysis at 15, underwent a transplant from his mother which lasted a couple of years, went back on dialysis for 4 years, underwent a second transplant which lasted 10 years and has now returned to dialysis. What strikes me is just how long Joe needed to wait for that second transplant. The same is here in New Zealand. Folks, it is really very very important that you tell your family if you are prepared to donate your organs – Do not rely on there being something on your driver’s license, this has no legal effect and is often ignored by grieving relatives. Have that conversation – today.
No one will need to wait more than 6 months for a transplant
$100 dialysis will be portable so most will not need to spend 5 hours, 3 days a week, sitting around with tubes in them.
By the way, both these people have End Stage Renal Disease following Chronic Kidney Disease (CKD). Joe’s form of CKD appears to be from a heredity disease. Ellie does not say. Neither are overweight or appear to have anything other than a normal life. CKD affects about 13% of the population (many do not know). Do not be complacent. If in doubt, get your kidney’s checked.